Genomic sequencing to aid diagnosis in pediatric and prenatal practice: Examining clinical utility, ethical implications, payer coverage, and data integration in a diverse population. | NIH | 2017-08-04 - 2022-05-31 | Role: Principal Investigator
Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening | NIH | 2017-01-12 - 2021-12-31 | Role: Principal Investigator
Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening | NIH | 2013-09-05 - 2019-08-31 | Role: Principal Investigator
Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment | NIH | 2011-09-12 - 2017-07-31 | Role: Principal Investigator
Center for Transdisciplinary ELSI Research in Translational Genomics | NIH | 2013-06-16 - 2017-05-31 | Role: Principal Investigator
Translating Addiction Genomics Research into Practice: Examining Ethics &Policy | NIH | 2001-12-01 - 2012-07-31 | Role: Principal Investigator
PROMOTING EFFECTIVE COMMUNICATION AND DECISION-MAKING FO | NIH | 2000-09-27 - 2006-08-31 | Role: Co-Investigator
Conference Proposal Neuroethics: Mapping the Field | NIH | 2002-05-12 - 2003-04-30 | Role: Principal Investigator
A CASE-BASED ETHICS CURRICULUM FOR THE BIOTECH INDUSTRY | NIH | 2000-03-20 - 2002-02-28 | Role: Principal Investigator
CULTURAL PLURALISM ÐICAL DECISION-MAKING IN NURSING | NIH | 1992-02-01 - 1996-02-29 | Role: Principal Investigator
Publications
MOST RECENT PUBLICATIONS FROM A TOTAL OF 176
Moving toward Equity through Embedded ELSI Ethnography.
Receiving a Pathogenic Variant in a Population Breast Cancer Screening Trial: A Mixed Method Study.
Riddle L, James JE, Naeim A, Madlensky L, Brain S, DeRosa D, Eklund M, Fiscalini AS, Heditsian D, Koenig B, Ross K, Sabacan LP, Tong B, Wenger N, Joseph G| | PubMed
“Mammograms are kind of my pacifier”: The cultural context of women’s preference for annual mammograms in a risk-based screening cohort.
Katherine Leggat-Barr, Galen Joseph, Leslie Riddle, Mika Caruncho, Barbara Koenig, Jennifer James| | UCSF Research Profile
Genetic ancestry and diagnostic yield of exome sequencing in a diverse population.
Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.
The role of polygenic risk scores in breast cancer risk perception and decision-making.
Riddle L, Joseph G, Caruncho M, Koenig BA, James JE| | PubMed
Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
Diagnostic Yield of Exome Sequencing in a Diverse Pediatric and Prenatal Population is not Associated with Genetic Ancestry.
Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
A draft human pangenome reference.
Liao WW, Asri M, Ebler J, Doerr D, Haukness M, Hickey G, Lu S, Lucas JK, Monlong J, Abel HJ, Buonaiuto S, Chang XH, Cheng H, Chu J, Colonna V, Eizenga JM, Feng X, Fischer C, Fulton RS, Garg S, Groza C, Guarracino A, Harvey WT, Heumos S, Howe K, Jain M, Lu TY, Markello C, Martin FJ, Mitchell MW, Munson KM, Mwaniki MN, Novak AM, Olsen HE, Pesout T, Porubsky D, Prins P, Sibbesen JA, Sirén J, Tomlinson C, Villani F, Vollger MR, Antonacci-Fulton LL, Baid G, Baker CA, Belyaeva A, Billis K, Carroll A, Chang PC, Cody S, Cook DE, Cook-Deegan RM, Cornejo OE, Diekhans M, Ebert P, Fairley S, Fedrigo O, Felsenfeld AL, Formenti G, Frankish A, Gao Y, Garrison NA, Giron CG, Green RE, Haggerty L, Hoekzema K, Hourlier T, Ji HP, Kenny EE, Koenig BA, Kolesnikov A, Korbel JO, Kordosky J, Koren S, Lee H, Lewis AP, Magalhães H, Marco-Sola S, Marijon P, McCartney A, McDaniel J, Mountcastle J, Nattestad M, Nurk S, Olson ND, Popejoy AB, Puiu D, Rautiainen M, Regier AA, Rhie A, Sacco S, Sanders AD, Schneider VA, Schultz BI, Shafin K, Smith MW, Sofia HJ, Abou Tayoun AN, Thibaud-Nissen F, Tricomi FF, Wagner J, Walenz B, Wood JMD, Zimin AV, Bourque G, Chaisson MJP, Flicek P, Phillippy AM, Zook JM, Eichler EE, Haussler D, Wang T, Jarvis ED, Miga KH, Garrison E, Marschall T, Hall IM, Li H, Paten B| | PubMed
O40: Clinical utility of prenatal exome sequencing in a diverse cohort*.
Mary Norton, Billie Lianoglou, Matthew Shear, Sara Ackerman, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Neil Risch, Pui-Yan Kwok, Anne Slavotinek, Teresa Sparks| | UCSF Research Profile
O41: Genes associated with disease in fetuses compared to children: Exome sequencing in a large pediatric and prenatal cohort.
Teresa Sparks, Billie Lianoglou, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Pui-Yan Kwok, Sara Ackerman, Anne Slavotinek, Neil Risch, Mary Norton| | UCSF Research Profile
The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.
Outram SM, Ackerman SL, Norstad M, Koenig B| | PubMed
Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost.
A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial.
James JE, Riddle L, Caruncho M, Koenig BA, Joseph G| | PubMed
Ten Simple Rules for Responsible Big Data Research.
Matthew Zook, Solon Barocas, Danah Boyd, Kate Crawford, Emily Keller, Seeta Peña Gangadharan, Alyssa Goodman, Rachelle Hollander, Barbara A. Koenig, Jacob Metcalf, Arvind Narayanan, Alondra Nelson, Frank Pasquale| | UCSF Research Profile
The Human Pangenome Project: a global resource to map genomic diversity.
Wang T, Antonacci-Fulton L, Howe K, Lawson HA, Lucas JK, Phillippy AM, Popejoy AB, Asri M, Carson C, Chaisson MJP, Chang X, Cook-Deegan R, Felsenfeld AL, Fulton RS, Garrison EP, Garrison NA, Graves-Lindsay TA, Ji H, Kenny EE, Koenig BA, Li D, Marschall T, McMichael JF, Novak AM, Purushotham D, Schneider VA, Schultz BI, Smith MW, Sofia HJ, Weissman T, Flicek P, Li H, Miga KH, Paten B, Jarvis ED, Hall IM, Eichler EE, Haussler D, Human Pangenome Reference Consortium| | PubMed
Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation.
How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL| | PubMed
The limits of personalization in precision medicine: Polygenic risk scores and racial categorization in a precision breast cancer screening trial.
Opportunities and challenges for the computational interpretation of rare variation in clinically important genes.
McInnes G, Sharo AG, Koleske ML, Brown JEH, Norstad M, Adhikari AN, Wang S, Brenner SE, Halpern J, Koenig BA, Magnus DC, Gallagher RC, Giacomini KM, Altman RB| | PubMed
1027 Diagnostic yield of exome sequencing in prenatal diagnosis.
Mary E. Norton, Billie R. Lianoglou, Jessica van Ziffle, Amanda Faubel, Sarah Downum, Anne M. Slavotinek, Pui-Yan Kwok, Barbara Koenig, Neil Risch, Patrick Devine, Teresa N. Sparks| | UCSF Research Profile
Toward better governance of human genomic data.
O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W| | PubMed
Researcher Perspectives on Data Sharing in Deep Brain Stimulation.
Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials.
Muñoz KA, Kostick K, Sanchez C, Kalwani L, Torgerson L, Hsu R, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire A, Zuk P, Lázaro-Muñoz G| | PubMed
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, Fahy N, Finlay T, Frith L, Goldenberg A, Hinton L, Hoppe N, Hughes N, Koenig B, Lignou S, McGowan M, Parker M, Prainsack B, Shabani M, Staunton C, Thompson R, Varnai K, Vayena E, Williams O, Williamson M, Chan S, Sheehan M| | PubMed
The role of exome sequencing in newborn screening for inborn errors of metabolism.
Adhikari AN, Gallagher RC, Wang Y, Currier RJ, Amatuni G, Bassaganyas L, Chen F, Kundu K, Kvale M, Mooney SD, Nussbaum RL, Randi SS, Sanford J, Shieh JT, Srinivasan R, Sunderam U, Tang H, Vaka D, Zou Y, Koenig BA, Kwok PY, Risch N, Puck JM, Brenner SE| | PubMed
Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures.
Popejoy AB, Crooks KR, Fullerton SM, Hindorff LA, Hooker GW, Koenig BA, Pino N, Ramos EM, Ritter DI, Wand H, Wright MW, Yudell M, Zou JY, Plon SE, Bustamante CD, Ormond KE, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group| | PubMed
Conversations on Cancer Chemotherapy Cessation in Patients With Advanced Cancer: Qualitative Findings From a Multi-Institutional Study.
904: Agreement to secondary findings with exome sequencing in pre- and postnatal settings.
Teresa N. Sparks, Flavia Chen, Shannon Rego, Billie R. Lianoglou, Sachi Patel, Anne M. Slavotinek, Barbara Koenig, Mary E. Norton| | UCSF Research Profile
FDA oversight of NSIGHT genomic research: the need for an integrated systems approach to regulation.
A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context.
Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J| | PubMed
Rethinking the "open future" argument against predictive genetic testing of children.
Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group| | PubMed
Characterizing the Biomedical Data-Sharing Landscape.
Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA| | PubMed
Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.
Concurrent and Overlapping Surgery: Perspectives From Parents of Adolescents Undergoing Spinal Posterior Instrumented Fusion for Idiopathic Scoliosis.
Bryant J, Markes A, Woolridge T, Cerruti D, Dzeng E, Koenig B, Diab M| | PubMed
Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.
Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Petersen GM, Wolf SM, Koenig BA| | PubMed
The clinical imperative for inclusivity: Race, ethnicity, and ancestry (REA) in genomics.
Popejoy AB, Ritter DI, Crooks K, Currey E, Fullerton SM, Hindorff LA, Koenig B, Ramos EM, Sorokin EP, Wand H, Wright MW, Zou J, Gignoux CR, Bonham VL, Plon SE, Bustamante CD, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group (ADWG)| | PubMed
The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.
Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, CSER consortium, Plon SE, Jarvik GP| | PubMed
Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology.
Kumbamu A, Geller G, Leppin A, Fernandez C, Tilburt J, Koenig B| | PubMed
Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.
Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS, members of the CSER Actionability and Return of Results Working Group| | PubMed
Natural history of lesions suspicious for basal cell carcinoma in older adults in Ikaria, Greece.
Wehner MR, Dalma N, Landefeld C, Pare-Anastasiadou A, Koutelidas I, Chren MM, Aji N, Teng CE, Koenig BA, Tang J, Covinsky K, Linos E| | PubMed
Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.
Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA, members of the NSIGHT Ethics and Policy Advisory Board| | PubMed
"Why did I get that part of you?" Understanding addiction genetics through family history.
Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.
Radecki Breitkopf C, Wolf SM, Chaffee KG, Robinson ME, Lindor NM, Gordon DR, Koenig BA, Petersen GM| | PubMed
Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS| | PubMed
Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years.
Kimball BC, Geller G, Warsame R, Kumbamu A, Jatoi A, Koenig B, Tilburt JC| | PubMed
Including all voices in international data-sharing governance.
Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A| | PubMed
California's End of Life Option Act: What Can We Learn from One Year of Legalization? (TH312).
Barbara Koenig, Laura Petrillo, Cindy Cain, Felicia Cohn, Judy Thomas| | UCSF Research Profile
Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health.
Kao AC, Jager AJ, Koenig BA, Moller AC, Tutty MA, Williams GC, Wright SM| | PubMed
Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories.
RESPONDING TO THE END-OF-LIFE OPTION ACT IN CALIFORNIA.
L. Forbes, L. Petrillo, E. Dzeng, K.L. Harrison, B. Scribner, B. Koenig| | UCSF Research Profile
Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.
Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS, PGen Study Group| | PubMed
How California Prepared for Implementation of Physician-Assisted Death: A Primer.
Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA| | PubMed
Ten simple rules for responsible big data research.
Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F| | PubMed
Community recommendations on biobank governance: Results from a deliberative community engagement in California.
Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D| | PubMed
How Should Palliative Care Be Involved in the Response to Physician Assisted Dying in California? Intimately: Perspectives from a Statewide Conference (S795).
Laura Petrillo, Eric Widera, Elizabeth Dzeng, Krista Harrison, Lindsay Forbes, Barbara Koenig, Ben Scribner| | UCSF Research Profile
Returning Results in Biobank Research: Global Trends and Solutions.
De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS| | PubMed
The Experience of Hospital Death: Assessing the Quality of Care at an Academic Medical Center.
Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.
Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA| | PubMed
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS| | PubMed
AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship.
Chris Feudtner, Jeremy Sugarman, Barbara A. Koenig, Peter A. Ubel, Richard F. Ittenbach, Laura Weiss Roberts, Laurence B. McCullough| | UCSF Research Profile
Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology.
Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC| | PubMed
Ethical, legal, and social implications of incorporating genomic information into electronic health records.
Chronic Addiction, Compulsion, and the Empirical Evidence.
Molly J. Dingel, Rachel Hammer, Jenny E. Ostergren, Jennifer B. McCormick, Barbara A. Koenig| | UCSF Research Profile
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA| | PubMed
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP| | PubMed
Framing Nicotine Addiction as a "Disease of the Brain": Social and Ethical Consequences.
Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic.
James KM, Cowl CT, Tilburt JC, Sinicrope PS, Robinson ME, Frimannsdottir KR, Tiedje K, Koenig BA| | PubMed
"I felt like the angel of death": role conflicts and moral distress among allied professionals employed by the US cardiovascular implantable electronic device industry.
Mueller PS, Ottenberg AL, Hayes DL, Koenig BA| | PubMed
"Just Because We Can Doesn't Mean We Should": views of nurses on deactivation of pacemakers and implantable cardioverter-defibrillators.
Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.
Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL, Consent and Community Consultation Working Group of the eMERGE Consortium| | PubMed
Incidental findings in imaging research: evaluating incidence, benefit, and burden.
Orme NM, Fletcher JG, Siddiki HA, Harmsen WS, O'Byrne MM, Port JD, Tremaine WJ, Pitot HC, McFarland EG, Robinson ME, Koenig BA, King BF, Wolf SM| | PubMed
'To prove this is the industry's best hope': big tobacco's support of research on the genetics of nicotine addiction.
Race and ancestry in biomedical research: exploring the challenges.
Caulfield T, Fullerton SM, Ali-Khan SE, Arbour L, Burchard EG, Cooper RS, Hardy BJ, Harry S, Hyde-Lay R, Kahn J, Kittles R, Koenig BA, Lee SS, Malinowski M, Ravitsky V, Sankar P, Scherer SW, Séguin B, Shickle D, Suarez-Kurtz G, Daar AS| | PubMed
Facing the challenges of influenza in healthcare settings: the ethical rationale for mandatory seasonal influenza vaccination and its implications for future pandemics.
The ethics of characterizing difference: guiding principles on using racial categories in human genetics.
Lee SS, Mountain J, Koenig B, Altman R, Brown M, Camarillo A, Cavalli-Sforza L, Cho M, Eberhardt J, Feldman M, Ford R, Greely H, King R, Markus H, Satz D, Snipp M, Steele C, Underhill P| | PubMed
Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology
Ashok Kumbamu, Gail Geller, Aaron Leppin, Cara Fernandez, Jon Tilburt, and Barbara Koenig| UCSF Research Profile
PubMed