University of California San Francisco

Barbara Koenig, PhD, RN
Barbara Koenig, PhD, RN

Professor, Institute for Health and Aging

Address

3333 California Street, #122M
San Francisco, CA 94118
United States

Email: [email protected]
Phone: 415-476-3786
Fax: 415-476-3915

Education

Institution Degree Dept or School End Date
University of California, San Francisco & Berkeley PhD Graduate Division (Medical Anthropology) 1988
University of Minnesota, Minneapolis BA Asian History (magna cum laude) 1976
University of Minnesota, Minneapolis BS Nursing (with distinction) 1974

Clinical Trials

  1. Clinical Utility of Pediatric Whole Exome Sequencing (NCT03525431)
    Related Conditions: Birth Defects, Intellectual Disability, Multiple Congenital Anomaly, Metabolic Disease, Epilepsy, Neurodegenerative Disease, Cerebral Palsy, Developmental Delay, Developmental Defect| Start Date: | End Date:

Grants and Funding

  • Genomic sequencing to aid diagnosis in pediatric and prenatal practice: Examining clinical utility, ethical implications, payer coverage, and data integration in a diverse population. | NIH | 2017-08-04 - 2022-05-31 | Role: Principal Investigator
  • Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening | NIH | 2017-01-12 - 2021-12-31 | Role: Principal Investigator
  • Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening | NIH | 2013-09-05 - 2019-08-31 | Role: Principal Investigator
  • Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment | NIH | 2011-09-12 - 2017-07-31 | Role: Principal Investigator
  • Center for Transdisciplinary ELSI Research in Translational Genomics | NIH | 2013-06-16 - 2017-05-31 | Role: Principal Investigator
  • Translating Addiction Genomics Research into Practice: Examining Ethics &Policy | NIH | 2001-12-01 - 2012-07-31 | Role: Principal Investigator
  • PROMOTING EFFECTIVE COMMUNICATION AND DECISION-MAKING FO | NIH | 2000-09-27 - 2006-08-31 | Role: Co-Investigator
  • Conference Proposal Neuroethics: Mapping the Field | NIH | 2002-05-12 - 2003-04-30 | Role: Principal Investigator
  • A CASE-BASED ETHICS CURRICULUM FOR THE BIOTECH INDUSTRY | NIH | 2000-03-20 - 2002-02-28 | Role: Principal Investigator
  • CULTURAL PLURALISM &ETHICAL DECISION-MAKING IN NURSING | NIH | 1992-02-01 - 1996-02-29 | Role: Principal Investigator

Publications

MOST RECENT PUBLICATIONS FROM A TOTAL OF 176
  1. Moving toward Equity through Embedded ELSI Ethnography.
    James JE, Riddle L, Koenig B, Joseph G| | PubMed
  2. Receiving a Pathogenic Variant in a Population Breast Cancer Screening Trial: A Mixed Method Study.
    Riddle L, James JE, Naeim A, Madlensky L, Brain S, DeRosa D, Eklund M, Fiscalini AS, Heditsian D, Koenig B, Ross K, Sabacan LP, Tong B, Wenger N, Joseph G| | PubMed
  3. “Mammograms are kind of my pacifier”: The cultural context of women’s preference for annual mammograms in a risk-based screening cohort.
    Katherine Leggat-Barr, Galen Joseph, Leslie Riddle, Mika Caruncho, Barbara Koenig, Jennifer James| | UCSF Research Profile
  4. Genetic ancestry and diagnostic yield of exome sequencing in a diverse population.
    Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
  5. Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
    Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
  6. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.
    Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P, Lázaro-Muñoz G| | PubMed
  7. The role of polygenic risk scores in breast cancer risk perception and decision-making.
    Riddle L, Joseph G, Caruncho M, Koenig BA, James JE| | PubMed
  8. Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
    Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
  9. Diagnostic Yield of Exome Sequencing in a Diverse Pediatric and Prenatal Population is not Associated with Genetic Ancestry.
    Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
  10. A draft human pangenome reference.
    Liao WW, Asri M, Ebler J, Doerr D, Haukness M, Hickey G, Lu S, Lucas JK, Monlong J, Abel HJ, Buonaiuto S, Chang XH, Cheng H, Chu J, Colonna V, Eizenga JM, Feng X, Fischer C, Fulton RS, Garg S, Groza C, Guarracino A, Harvey WT, Heumos S, Howe K, Jain M, Lu TY, Markello C, Martin FJ, Mitchell MW, Munson KM, Mwaniki MN, Novak AM, Olsen HE, Pesout T, Porubsky D, Prins P, Sibbesen JA, Sirén J, Tomlinson C, Villani F, Vollger MR, Antonacci-Fulton LL, Baid G, Baker CA, Belyaeva A, Billis K, Carroll A, Chang PC, Cody S, Cook DE, Cook-Deegan RM, Cornejo OE, Diekhans M, Ebert P, Fairley S, Fedrigo O, Felsenfeld AL, Formenti G, Frankish A, Gao Y, Garrison NA, Giron CG, Green RE, Haggerty L, Hoekzema K, Hourlier T, Ji HP, Kenny EE, Koenig BA, Kolesnikov A, Korbel JO, Kordosky J, Koren S, Lee H, Lewis AP, Magalhães H, Marco-Sola S, Marijon P, McCartney A, McDaniel J, Mountcastle J, Nattestad M, Nurk S, Olson ND, Popejoy AB, Puiu D, Rautiainen M, Regier AA, Rhie A, Sacco S, Sanders AD, Schneider VA, Schultz BI, Shafin K, Smith MW, Sofia HJ, Abou Tayoun AN, Thibaud-Nissen F, Tricomi FF, Wagner J, Walenz B, Wood JMD, Zimin AV, Bourque G, Chaisson MJP, Flicek P, Phillippy AM, Zook JM, Eichler EE, Haussler D, Wang T, Jarvis ED, Miga KH, Garrison E, Marschall T, Hall IM, Li H, Paten B| | PubMed
176
View all 176 Publications
MOST RECENT PUBLICATIONS FROM A TOTAL OF 176
  1. Moving toward Equity through Embedded ELSI Ethnography.
    James JE, Riddle L, Koenig B, Joseph G| | PubMed
  2. Receiving a Pathogenic Variant in a Population Breast Cancer Screening Trial: A Mixed Method Study.
    Riddle L, James JE, Naeim A, Madlensky L, Brain S, DeRosa D, Eklund M, Fiscalini AS, Heditsian D, Koenig B, Ross K, Sabacan LP, Tong B, Wenger N, Joseph G| | PubMed
  3. “Mammograms are kind of my pacifier”: The cultural context of women’s preference for annual mammograms in a risk-based screening cohort.
    Katherine Leggat-Barr, Galen Joseph, Leslie Riddle, Mika Caruncho, Barbara Koenig, Jennifer James| | UCSF Research Profile
  4. Genetic ancestry and diagnostic yield of exome sequencing in a diverse population.
    Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
  5. Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
    Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
  6. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.
    Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P, Lázaro-Muñoz G| | PubMed
  7. The role of polygenic risk scores in breast cancer risk perception and decision-making.
    Riddle L, Joseph G, Caruncho M, Koenig BA, James JE| | PubMed
  8. Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
    Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME| | PubMed
  9. Diagnostic Yield of Exome Sequencing in a Diverse Pediatric and Prenatal Population is not Associated with Genetic Ancestry.
    Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N| | PubMed
  10. A draft human pangenome reference.
    Liao WW, Asri M, Ebler J, Doerr D, Haukness M, Hickey G, Lu S, Lucas JK, Monlong J, Abel HJ, Buonaiuto S, Chang XH, Cheng H, Chu J, Colonna V, Eizenga JM, Feng X, Fischer C, Fulton RS, Garg S, Groza C, Guarracino A, Harvey WT, Heumos S, Howe K, Jain M, Lu TY, Markello C, Martin FJ, Mitchell MW, Munson KM, Mwaniki MN, Novak AM, Olsen HE, Pesout T, Porubsky D, Prins P, Sibbesen JA, Sirén J, Tomlinson C, Villani F, Vollger MR, Antonacci-Fulton LL, Baid G, Baker CA, Belyaeva A, Billis K, Carroll A, Chang PC, Cody S, Cook DE, Cook-Deegan RM, Cornejo OE, Diekhans M, Ebert P, Fairley S, Fedrigo O, Felsenfeld AL, Formenti G, Frankish A, Gao Y, Garrison NA, Giron CG, Green RE, Haggerty L, Hoekzema K, Hourlier T, Ji HP, Kenny EE, Koenig BA, Kolesnikov A, Korbel JO, Kordosky J, Koren S, Lee H, Lewis AP, Magalhães H, Marco-Sola S, Marijon P, McCartney A, McDaniel J, Mountcastle J, Nattestad M, Nurk S, Olson ND, Popejoy AB, Puiu D, Rautiainen M, Regier AA, Rhie A, Sacco S, Sanders AD, Schneider VA, Schultz BI, Shafin K, Smith MW, Sofia HJ, Abou Tayoun AN, Thibaud-Nissen F, Tricomi FF, Wagner J, Walenz B, Wood JMD, Zimin AV, Bourque G, Chaisson MJP, Flicek P, Phillippy AM, Zook JM, Eichler EE, Haussler D, Wang T, Jarvis ED, Miga KH, Garrison E, Marschall T, Hall IM, Li H, Paten B| | PubMed
  11. O40: Clinical utility of prenatal exome sequencing in a diverse cohort*.
    Mary Norton, Billie Lianoglou, Matthew Shear, Sara Ackerman, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Neil Risch, Pui-Yan Kwok, Anne Slavotinek, Teresa Sparks| | UCSF Research Profile
  12. O41: Genes associated with disease in fetuses compared to children: Exome sequencing in a large pediatric and prenatal cohort.
    Teresa Sparks, Billie Lianoglou, Nuriye Sahin-Holodlugil, Mark Kvale, Jessica Van Ziffle, W. Patrick Devine, Ugur Hodoglugil, Pierre-Marie Martin, Barbara Koenig, Pui-Yan Kwok, Sara Ackerman, Anne Slavotinek, Neil Risch, Mary Norton| | UCSF Research Profile
  13. The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.
    Outram SM, Ackerman SL, Norstad M, Koenig B| | PubMed
  14. Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost.
    Lázaro-Muñoz G, Pham MT, Muñoz KA, Kostick-Quenet K, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P| | PubMed
  15. A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial.
    James JE, Riddle L, Caruncho M, Koenig BA, Joseph G| | PubMed
  16. Ten Simple Rules for Responsible Big Data Research.
    Matthew Zook, Solon Barocas, Danah Boyd, Kate Crawford, Emily Keller, Seeta Peña Gangadharan, Alyssa Goodman, Rachelle Hollander, Barbara A. Koenig, Jacob Metcalf, Arvind Narayanan, Alondra Nelson, Frank Pasquale| | UCSF Research Profile
  17. The Human Pangenome Project: a global resource to map genomic diversity.
    Wang T, Antonacci-Fulton L, Howe K, Lawson HA, Lucas JK, Phillippy AM, Popejoy AB, Asri M, Carson C, Chaisson MJP, Chang X, Cook-Deegan R, Felsenfeld AL, Fulton RS, Garrison EP, Garrison NA, Graves-Lindsay TA, Ji H, Kenny EE, Koenig BA, Li D, Marschall T, McMichael JF, Novak AM, Purushotham D, Schneider VA, Schultz BI, Smith MW, Sofia HJ, Weissman T, Flicek P, Li H, Miga KH, Paten B, Jarvis ED, Hall IM, Eichler EE, Haussler D, Human Pangenome Reference Consortium| | PubMed
  18. Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation.
    Zuk P, Sanchez CE, Kostick-Quenet K, Muñoz KA, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Outram S, Koenig BA, McGuire AL, Lázaro-Muñoz G| | PubMed
  19. Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement.
    Kostick-Quenet K, Kalwani L, Koenig B, Torgerson L, Sanchez C, Munoz K, Hsu RL, Sierra-Mercado D, Robinson JO, Outram S, Pereira S, McGuire A, Zuk P, Lazaro-Munoz G| | PubMed
  20. Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach.
    Rego S, Hoban H, Outram S, Zamora AN, Chen F, Sahin-Hodoglugil N, Anguiano B, Norstad M, Yip T, Lianoglou B, Sparks TN, Norton ME, Koenig BA, Slavotinek AM, Ackerman SL| | PubMed
  21. How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?
    Brown JEH, Koenig BA| | PubMed
  22. Consensus statement for the perinatal management of patients with α thalassemia major.
    MacKenzie TC, Amid A, Angastiniotis M, Butler C, Gilbert S, Gonzalez J, Keller RL, Kharbanda S, Kirby-Allen M, Koenig BA, Kyono W, Lal A, Lianoglou BR, Norton ME, Ogasawara KK, Panchalee T, Rosner M, Schwab M, Thompson A, Waye JS, Vichinsky E| | PubMed
  23. "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.
    Gordon DR, Koenig BA| | PubMed
  24. Ethical, Legal, and Social Implications of Fetal Gene Therapy.
    Brown JEH, Koenig BA| | PubMed
  25. The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
    Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL| | PubMed
  26. The limits of personalization in precision medicine: Polygenic risk scores and racial categorization in a precision breast cancer screening trial.
    James JE, Riddle L, Koenig BA, Joseph G| | PubMed
  27. Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
    Smith HS, Morain SR, Robinson JO, Canfield I, Malek J, Rubanovich CK, Bloss CS, Ackerman SL, Biesecker B, Brothers KB, Goytia CN, Horowitz CR, Knight SJ, Koenig B, Kraft SA, Outram S, Rini C, Shipman KJ, Waltz M, Wilfond B, McGuire AL| | PubMed
  28. Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.
    Outram S, Muñoz KA, Kostick-Quenet K, Sanchez CE, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman WK, McGuire AL, Zuk P, Lázaro-Muñoz G| | PubMed
  29. Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.
    Gutierrez AM, Robinson JO, Outram SM, Smith HS, Kraft SA, Donohue KE, Biesecker BB, Brothers KB, Chen F, Hailu B, Hindorff LA, Hoban H, Hsu RL, Knight SJ, Koenig BA, Lewis KL, Lich KH, O'Daniel JM, Okuyama S, Tomlinson GE, Waltz M, Wilfond BS, Ackerman SL, Majumder MA| | PubMed
  30. Preference for secondary findings in prenatal and pediatric exome sequencing.
    Swanson K, Sparks TN, Lianoglou BR, Chen F, Downum S, Patel S, Rego S, Yip T, Van Ziffle J, Koenig BA, Slavotinek AM, Norton ME| | PubMed
  31. Opportunities and challenges for the computational interpretation of rare variation in clinically important genes.
    McInnes G, Sharo AG, Koleske ML, Brown JEH, Norstad M, Adhikari AN, Wang S, Brenner SE, Halpern J, Koenig BA, Magnus DC, Gallagher RC, Giacomini KM, Altman RB| | PubMed
  32. 1027 Diagnostic yield of exome sequencing in prenatal diagnosis.
    Mary E. Norton, Billie R. Lianoglou, Jessica van Ziffle, Amanda Faubel, Sarah Downum, Anne M. Slavotinek, Pui-Yan Kwok, Barbara Koenig, Neil Risch, Patrick Devine, Teresa N. Sparks| | UCSF Research Profile
  33. Toward better governance of human genomic data.
    O'Doherty KC, Shabani M, Dove ES, Bentzen HB, Borry P, Burgess MM, Chalmers D, De Vries J, Eckstein L, Fullerton SM, Juengst E, Kato K, Kaye J, Knoppers BM, Koenig BA, Manson SM, McGrail KM, McGuire AL, Meslin EM, Nicol D, Prainsack B, Terry SF, Thorogood A, Burke W| | PubMed
  34. Researcher Perspectives on Data Sharing in Deep Brain Stimulation.
    Zuk P, Sanchez CE, Kostick K, Torgerson L, Muñoz KA, Hsu R, Kalwani L, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire AL, Lázaro-Muñoz G| | PubMed
  35. Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials.
    Muñoz KA, Kostick K, Sanchez C, Kalwani L, Torgerson L, Hsu R, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire A, Zuk P, Lázaro-Muñoz G| | PubMed
  36. Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
    Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, Fahy N, Finlay T, Frith L, Goldenberg A, Hinton L, Hoppe N, Hughes N, Koenig B, Lignou S, McGowan M, Parker M, Prainsack B, Shabani M, Staunton C, Thompson R, Varnai K, Vayena E, Williams O, Williamson M, Chan S, Sheehan M| | PubMed
  37. The role of exome sequencing in newborn screening for inborn errors of metabolism.
    Adhikari AN, Gallagher RC, Wang Y, Currier RJ, Amatuni G, Bassaganyas L, Chen F, Kundu K, Kvale M, Mooney SD, Nussbaum RL, Randi SS, Sanford J, Shieh JT, Srinivasan R, Sunderam U, Tang H, Vaka D, Zou Y, Koenig BA, Kwok PY, Risch N, Puck JM, Brenner SE| | PubMed
  38. Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures.
    Popejoy AB, Crooks KR, Fullerton SM, Hindorff LA, Hooker GW, Koenig BA, Pino N, Ramos EM, Ritter DI, Wand H, Wright MW, Yudell M, Zou JY, Plon SE, Bustamante CD, Ormond KE, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group| | PubMed
  39. Conversations on Cancer Chemotherapy Cessation in Patients With Advanced Cancer: Qualitative Findings From a Multi-Institutional Study.
    Stout J, Kumbamu A, Tilburt J, Fernandez C, Geller G, Koenig B, Lenz HJ, Jatoi A| | PubMed
  40. 904: Agreement to secondary findings with exome sequencing in pre- and postnatal settings.
    Teresa N. Sparks, Flavia Chen, Shannon Rego, Billie R. Lianoglou, Sachi Patel, Anne M. Slavotinek, Barbara Koenig, Mary E. Norton| | UCSF Research Profile
  41. FDA oversight of NSIGHT genomic research: the need for an integrated systems approach to regulation.
    Milko LV, Chen F, Chan K, Brower AM, Agrawal PB, Beggs AH, Berg JS, Brenner SE, Holm IA, Koenig BA, Parad RB, Powell CM, Kingsmore SF| | PubMed
  42. Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.
    Childerhose JE, Finnila CR, Yu JH, Koenig BA, McEwen J, Berg SL, Wilfond BS, Appelbaum PS, Brothers KB| | PubMed
  43. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.
    Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS, Clinical Sequencing Exploratory Research (CSER) Consortium Informed Consent and Governance Working G| | PubMed
  44. Hospital and Health System Policies Concerning the California End of Life Option Act.
    Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS| | PubMed
  45. Hospital Responses to the End of Life Option Act: Implementation of Aid in Dying in California.
    Cain CL, Koenig BA, Starks H, Thomas J, Forbes L, McCleskey S, Wenger NS| | PubMed
  46. A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context.
    Tilburt J, Yost KJ, Lenz HJ, Zúñiga ML, O'Byrne T, Branda ME, Leppin AL, Kimball B, Fernandez C, Jatoi A, Barwise A, Kumbamu A, Montori V, Koenig BA, Geller G, Larson S, Roter DL| | PubMed
  47. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.
    Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SC| | PubMed
  48. Consent insufficient for data release.
    Nicol D, Eckstein L, Bentzen HB, Borry P, Burgess M, Burke W, Chalmers D, Cho M, Dove E, Fullerton S, Ida R, Kato K, Kaye J, Koenig B, Manson S, McGrail K, Meslin E, O'Doherty K, Prainsack B, Shabani M, Tabor H, Thorogood A, de Vries J| | PubMed
  49. Rethinking the "open future" argument against predictive genetic testing of children.
    Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group| | PubMed
  50. Characterizing the Biomedical Data-Sharing Landscape.
    Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA| | PubMed
  51. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.
    Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL| | PubMed
  52. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.
    McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R| | PubMed
  53. The Role of Participants in a Medical Information Commons.
    Majumder MA, Bollinger JM, Villanueva AG, Deverka PA, Koenig BA| | PubMed
  54. Concurrent and Overlapping Surgery: Perspectives From Parents of Adolescents Undergoing Spinal Posterior Instrumented Fusion for Idiopathic Scoliosis.
    Bryant J, Markes A, Woolridge T, Cerruti D, Dzeng E, Koenig B, Diab M| | PubMed
  55. Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.
    Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Petersen GM, Wolf SM, Koenig BA| | PubMed
  56. The clinical imperative for inclusivity: Race, ethnicity, and ancestry (REA) in genomics.
    Popejoy AB, Ritter DI, Crooks K, Currey E, Fullerton SM, Hindorff LA, Koenig B, Ramos EM, Sorokin EP, Wand H, Wright MW, Zou J, Gignoux CR, Bonham VL, Plon SE, Bustamante CD, Clinical Genome Resource (ClinGen) Ancestry and Diversity Working Group (ADWG)| | PubMed
  57. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.
    Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, CSER consortium, Plon SE, Jarvik GP| | PubMed
  58. Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology.
    Kumbamu A, Geller G, Leppin A, Fernandez C, Tilburt J, Koenig B| | PubMed
  59. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.
    Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS, members of the CSER Actionability and Return of Results Working Group| | PubMed
  60. Natural history of lesions suspicious for basal cell carcinoma in older adults in Ikaria, Greece.
    Wehner MR, Dalma N, Landefeld C, Pare-Anastasiadou A, Koutelidas I, Chren MM, Aji N, Teng CE, Koenig BA, Tang J, Covinsky K, Linos E| | PubMed
  61. Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.
    Johnston J, Lantos JD, Goldenberg A, Chen F, Parens E, Koenig BA, members of the NSIGHT Ethics and Policy Advisory Board| | PubMed
  62. "Why did I get that part of you?" Understanding addiction genetics through family history.
    Dingel MJ, Ostergren J, Koenig BA, McCormick J| | PubMed
  63. Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.
    Radecki Breitkopf C, Wolf SM, Chaffee KG, Robinson ME, Lindor NM, Gordon DR, Koenig BA, Petersen GM| | PubMed
  64. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.
    Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS| | PubMed
  65. Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years.
    Kimball BC, Geller G, Warsame R, Kumbamu A, Jatoi A, Koenig B, Tilburt JC| | PubMed
  66. Including all voices in international data-sharing governance.
    Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A| | PubMed
  67. California's End of Life Option Act: What Can We Learn from One Year of Legalization? (TH312).
    Barbara Koenig, Laura Petrillo, Cindy Cain, Felicia Cohn, Judy Thomas| | UCSF Research Profile
  68. Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health.
    Kao AC, Jager AJ, Koenig BA, Moller AC, Tutty MA, Williams GC, Wright SM| | PubMed
  69. Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories.
    Ackerman SL, Koenig BA| | PubMed
  70. Creating a data resource: what will it take to build a medical information commons?
    Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL| | PubMed
  71. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.
    Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W| | PubMed
  72. "I don't have to know why it snows, I just have to shovel it!": Addiction Recovery, Genetic Frameworks, and Biological Citizenship.
    Dingel MJ, Ostergren J, Heaney K, Koenig BA, McCormick J| | PubMed
  73. RESPONDING TO THE END-OF-LIFE OPTION ACT IN CALIFORNIA.
    L. Forbes, L. Petrillo, E. Dzeng, K.L. Harrison, B. Scribner, B. Koenig| | UCSF Research Profile
  74. Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.
    Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS, PGen Study Group| | PubMed
  75. How California Prepared for Implementation of Physician-Assisted Death: A Primer.
    Petrillo LA, Dzeng E, Harrison KL, Forbes L, Scribner B, Koenig BA| | PubMed
  76. Ten simple rules for responsible big data research.
    Zook M, Barocas S, Boyd D, Crawford K, Keller E, Gangadharan SP, Goodman A, Hollander R, Koenig BA, Metcalf J, Narayanan A, Nelson A, Pasquale F| | PubMed
  77. Community recommendations on biobank governance: Results from a deliberative community engagement in California.
    Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D| | PubMed
  78. How Should Palliative Care Be Involved in the Response to Physician Assisted Dying in California? Intimately: Perspectives from a Statewide Conference (S795).
    Laura Petrillo, Eric Widera, Elizabeth Dzeng, Krista Harrison, Lindsay Forbes, Barbara Koenig, Ben Scribner| | UCSF Research Profile
  79. Returning Results in Biobank Research: Global Trends and Solutions.
    De Clercq E, Kaye J, Wolf SM, Koenig BA, Elger BS| | PubMed
  80. The Experience of Hospital Death: Assessing the Quality of Care at an Academic Medical Center.
    Carey EC, Dose AM, Humeniuk KM, Kuan YC, Hicks AD, Ottenberg AL, Tilburt JC, Koenig B| | PubMed
  81. A taxonomy of medical uncertainties in clinical genome sequencing.
    Han PKJ, Umstead KL, Bernhardt BA, Green RC, Joffe S, Koenig B, Krantz I, Waterston LB, Biesecker LG, Biesecker BB| | PubMed
  82. Newborn Sequencing in Genomic Medicine and Public Health.
    Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL| | PubMed
  83. If you build it, they will come: unintended future uses of organised health data collections.
    O'Doherty KC, Christofides E, Yen J, Bentzen HB, Burke W, Hallowell N, Koenig BA, Willison DJ| | PubMed
  84. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.
    Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER Consortium| | PubMed
  85. Communication predictors and consequences of Complementary and Alternative Medicine (CAM) discussions in oncology visits.
    Roter DL, Yost KJ, O'Byrne T, Branda M, Leppin A, Kimball B, Fernandez C, Jatoi A, Kumbamu A, Montori V, Koenig B, Geller G, Larson S, Tilburt J| | PubMed
  86. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.
    Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER Consortium| | PubMed
  87. Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing.
    Joseph G, Chen F, Harris-Wai J, Puck JM, Young C, Koenig BA| | PubMed
  88. Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice.
    McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group| | PubMed
  89. National survey and community advisory board development for a bipolar disorder biobank.
    Frye MA, Doederlein A, Koenig B, McElroy SL, Nassan M, Seymour LR, Biernacka JM, Daniels AS| | PubMed
  90. The media and behavioral genetics: Alternatives coexisting with addiction genetics.
    Dingel MJ, Ostergren J, McCormick JB, Hammer R, Koenig BA| | PubMed
  91. Unwarranted optimism in media portrayals of genetic research on addiction overshadows critical ethical and social concerns.
    Ostergren JE, Dingel MJ, McCormick JB, Koenig BA| | PubMed
  92. EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.
    Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D, in collaboration with UC BRAID| | PubMed
  93. Dying in the Hospital: Perspectives of family members.
    Dose AM, Carey EC, Rhudy LM, Chiu Y, Frimannsdottir K, Ottenberg AL, Koenig BA| | PubMed
  94. Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.
    Garrett SB, Dohan D, Koenig BA| | PubMed
  95. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.
    Wolf SM, Burke W, Koenig BA| | PubMed
  96. Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.
    Breitkopf CR, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA| | PubMed
  97. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
    Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS| | PubMed
  98. Have we asked too much of consent?
    Koenig BA| | PubMed
  99. Challenges in translational research: the views of addiction scientists.
    Ostergren JE, Hammer RR, Dingel MJ, Koenig BA, McCormick JB| | PubMed
  100. AJOB Empirical Bioethics: A Home for Empirical Bioethics Scholarship.
    Chris Feudtner, Jeremy Sugarman, Barbara A. Koenig, Peter A. Ubel, Richard F. Ittenbach, Laura Weiss Roberts, Laurence B. McCullough| | UCSF Research Profile
  101. Listening in on difficult conversations: an observational, multi-center investigation of real-time conversations in medical oncology.
    Kimball BC, James KM, Yost KJ, Fernandez CA, Kumbamu A, Leppin AL, Robinson ME, Geller G, Roter DL, Larson SM, Lenz HJ, Garcia AA, Braddock CH, Jatoi A, de Nuncio ML, Montori VM, Koenig BA, Tilburt JC| | PubMed
  102. Ethical, legal, and social implications of incorporating genomic information into electronic health records.
    Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ| | PubMed
  103. Stakeholder engagement: a key component of integrating genomic information into electronic health records.
    Hartzler A, McCarty CA, Rasmussen LV, Williams MS, Brilliant M, Bowton EA, Clayton EW, Faucett WA, Ferryman K, Field JR, Fullerton SM, Horowitz CR, Koenig BA, McCormick JB, Ralston JD, Sanderson SC, Smith ME, Trinidad SB| | PubMed
  104. The Mayo Clinic Biobank: a building block for individualized medicine.
    Olson JE, Ryu E, Johnson KJ, Koenig BA, Maschke KJ, Morrisette JA, Liebow M, Takahashi PY, Fredericksen ZS, Sharma RG, Anderson KS, Hathcock MA, Carnahan JA, Pathak J, Lindor NM, Beebe TJ, Thibodeau SN, Cerhan JR| | PubMed
  105. Point-counterpoint. Ethics and genomic incidental findings.
    McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC| | PubMed
  106. Fixing research subjects protection in the United States: moving beyond consent.
    Koenig BA| | PubMed
  107. Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?
    Ridgeway JL, Han LC, Olson JE, Lackore KA, Koenig BA, Beebe TJ, Ziegenfuss JY| | PubMed
  108. Addiction: Current Criticism of the Brain Disease Paradigm.
    Hammer R, Dingel M, Ostergren J, Partridge B, McCormick J, Koenig BA| | PubMed
  109. Addiction science, meet translational genomics.
    Koenig BA| | PubMed
  110. The experience of addiction as told by the addicted: incorporating biological understandings into self-story.
    Hammer RR, Dingel MJ, Ostergren JE, Nowakowski KE, Koenig BA| | PubMed
  111. Chronic Addiction, Compulsion, and the Empirical Evidence.
    Molly J. Dingel, Rachel Hammer, Jenny E. Ostergren, Jennifer B. McCormick, Barbara A. Koenig| | UCSF Research Profile
  112. Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
    Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA| | PubMed
  113. Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
    Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP| | PubMed
  114. Framing Nicotine Addiction as a "Disease of the Brain": Social and Ethical Consequences.
    Dingel MJ, Karkazis K, Koenig BA| | PubMed
  115. Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic.
    James KM, Cowl CT, Tilburt JC, Sinicrope PS, Robinson ME, Frimannsdottir KR, Tiedje K, Koenig BA| | PubMed
  116. "I felt like the angel of death": role conflicts and moral distress among allied professionals employed by the US cardiovascular implantable electronic device industry.
    Mueller PS, Ottenberg AL, Hayes DL, Koenig BA| | PubMed
  117. "Just Because We Can Doesn't Mean We Should": views of nurses on deactivation of pacemakers and implantable cardioverter-defibrillators.
    Kramer DB, Ottenberg AL, Gerhardson S, Mueller LA, Kaufman SR, Koenig BA, Mueller PS| | PubMed
  118. Integrating genetic studies of nicotine addiction into public health practice: stakeholder views on challenges, barriers and opportunities.
    Dingel MJ, Hicks AD, Robinson ME, Koenig BA| | PubMed
  119. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.
    McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW| | PubMed
  120. Vaccinating health care workers against influenza: the ethical and legal rationale for a mandate.
    Ottenberg AL, Wu JT, Poland GA, Jacobson RM, Koenig BA, Tilburt JC| | PubMed
  121. Ironic technology: Old age and the implantable cardioverter defibrillator in US health care.
    Kaufman SR, Mueller PS, Ottenberg AL, Koenig BA| | PubMed
  122. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.
    Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL, Consent and Community Consultation Working Group of the eMERGE Consortium| | PubMed
  123. Incidental findings in imaging research: evaluating incidence, benefit, and burden.
    Orme NM, Fletcher JG, Siddiki HA, Harmsen WS, O'Byrne MM, Port JD, Tremaine WJ, Pitot HC, McFarland EG, Robinson ME, Koenig BA, King BF, Wolf SM| | PubMed
  124. 'To prove this is the industry's best hope': big tobacco's support of research on the genetics of nicotine addiction.
    Gundle KR, Dingel MJ, Koenig BA| | PubMed
  125. Race and ancestry in biomedical research: exploring the challenges.
    Caulfield T, Fullerton SM, Ali-Khan SE, Arbour L, Burchard EG, Cooper RS, Hardy BJ, Harry S, Hyde-Lay R, Kahn J, Kittles R, Koenig BA, Lee SS, Malinowski M, Ravitsky V, Sankar P, Scherer SW, Séguin B, Shickle D, Suarez-Kurtz G, Daar AS| | PubMed
  126. Facing the challenges of influenza in healthcare settings: the ethical rationale for mandatory seasonal influenza vaccination and its implications for future pandemics.
    Tilburt JC, Mueller PS, Ottenberg AL, Poland GA, Koenig BA| | PubMed
  127. The ethics of characterizing difference: guiding principles on using racial categories in human genetics.
    Lee SS, Mountain J, Koenig B, Altman R, Brown M, Camarillo A, Cavalli-Sforza L, Cho M, Eberhardt J, Feldman M, Ford R, Greely H, King R, Markus H, Satz D, Snipp M, Steele C, Underhill P| | PubMed
  128. Topics in transplant ethics.
    Griffin MD, Koenig BA, Schears RM| | PubMed
  129. Incidental findings in CT colonography: literature review and survey of current research practice.
    Siddiki H, Fletcher JG, McFarland B, Dajani N, Orme N, Koenig B, Strobel M, Wolf SM| | PubMed
  130. Managing incidental findings in human subjects research: analysis and recommendations.
    Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS| | PubMed
  131. Assessing attitudes about genetic testing as a component of continuing medical education.
    Mrazek M, Koenig B, Skime M, Snyder K, Hook C, Black J, Mrazek D| | PubMed
  132. Ethical issues in stopping randomized trials early because of apparent benefit.
    Mueller PS, Montori VM, Bassler D, Koenig BA, Guyatt GH| | PubMed
  133. Family member involvement in hastened death.
    Starks H, Back AL, Pearlman RA, Koenig BA, Hsu C, Gordon JR, Bharucha AJ| | PubMed
  134. Systematic review of ethics consultation: a route to curriculum development in post-graduate medical education.
    Mueller PS, Koenig BA| | PubMed
  135. Nicotine addiction through a neurogenomic prism: ethics, public health, and smoking.
    Caron L, Karkazis K, Raffin TA, Swan G, Koenig BA| | PubMed
  136. Motivations for physician-assisted suicide.
    Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha AJ, Koenig BA, Battin MP| | PubMed
  137. Advertising, patient decision making, and self-referral for computed tomographic and magnetic resonance imaging.
    Illes J, Kann D, Karetsky K, Letourneau P, Raffin TA, Schraedley-Desmond P, Koenig BA, Atlas SW| | PubMed
  138. Genetic research and health disparities.
    Sankar P, Cho MK, Condit CM, Hunt LM, Koenig B, Marshall P, Lee SS, Spicer P| | PubMed
  139. Accounting for culture in a globalized bioethics.
    Marshall P, Koenig B| | PubMed
  140. Environmental and genetic determinants of tobacco use: methodology for a multidisciplinary, longitudinal family-based investigation.
    Swan GE, Hudmon KS, Jack LM, Hemberger K, Carmelli D, Khroyan TV, Ring HZ, Hops H, Andrews JA, Tildesley E, McBride D, Benowitz N, Webster C, Wilhelmsen KC, Feiler HS, Koenig B, Caron L, Illes J, Cheng LS| | PubMed
  141. Self-referred whole-body CT imaging: current implications for health care consumers.
    Illes J, Fan E, Koenig BA, Raffin TA, Kann D, Atlas SW| | PubMed
  142. Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects.
    Koenig BA, Back AL, Crawley LM| | PubMed
  143. Planning the genome institute's future.
    Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D| | PubMed
  144. Dead donors and the "shortage" of human organs: are we missing the point?
    Koenig BA| | PubMed
  145. "Choice" in end-of-life decision making: researching fact or fiction?
    Drought TS, Koenig BA| | PubMed
  146. Strategies for culturally effective end-of-life care.
    Crawley LM, Marshall PA, Lo B, Koenig BA, End-of-Life Care Consensus Panel| | PubMed
  147. Brain science and social policy.
    Koenig BA, Greely H, Schacter DL, Winslade WJ, Mobley W| | PubMed
  148. The meanings of "race" in the new genomics: implications for health disparities research.
    Lee SS, Mountain J, Koenig BA| | PubMed
  149. Why not grant primacy to the family?
    Koenig BA| | PubMed
  150. Ethical decision making and patient autonomy: a comparison of physicians and patients in Japan and the United States.
    Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA| | PubMed
  151. Collective fear, individualized risk: the social and cultural context of genetic testing for breast cancer.
    Press N, Fishman JR, Koenig BA| | PubMed
  152. Rethinking fundamental assumptions: SUPPORT's implications for future reform. Study to Understand Prognoses and Preferences and Risks of Treatment.
    Lynn J, Arkes HR, Stevens M, Cohn F, Koenig B, Fox E, Dawson NV, Phillips RS, Hamel MB, Tsevat J| | PubMed
  153. Participation in the cooperative family registry for breast cancer studies: issues of informed consent.
    Daly MB, Offit K, Li F, Glendon G, Yaker A, West D, Koenig B, McCredie M, Venne V, Nayfield S, Seminara D| | PubMed
  154. Acute profound thrombocytopenia following C7E3 Fab (Abciximab) therapy: case reports, review of the literature and implications for therapy.
    Jubelirer SJ, Koenig BA, Bates MC| | PubMed
  155. Spatial and temporal trends of contaminants in Canadian Arctic freshwater and terrestrial ecosystems: a review.
    Braune B, Muir D, DeMarch B, Gamberg M, Poole K, Currie R, Dodd M, Duschenko W, Eamer J, Elkin B, Evans M, Grundy S, Hebert C, Johnstone R, Kidd K, Koenig B, Lockhart L, Marshall H, Reimer K, Sanderson J, Shutt L| | PubMed
  156. Genetic testing and Alzheimer disease: recommendations of the Stanford Program in Genomics, Ethics, and Society.
    McConnell LM, Koenig BA, Greely HT, Raffin TA| | PubMed
  157. Understanding probabilistic risk in predisposition genetic testing for Alzheimer disease.
    Koenig BA, Silverberg HL| | PubMed
  158. Multicultural considerations in the use of advance directives.
    Ersek M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig BA| | PubMed
  159. Informed consent in a multicultural cancer patient population: implications for nursing practice.
    Barnes DM, Davis AJ, Moran T, Portillo CJ, Koenig BA| | PubMed
  160. Genetic testing and Alzheimer disease: has the time come? Alzheimer Disease Working Group of the Stanford Program in Genomics, Ethics & Society.
    McConnell LM, Koenig BA, Greely HT, Raffin TA| | PubMed
  161. Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford Program in Genomics, Ethics, and Society. Breast Cancer Working Group.
    Koenig BA, Greely HT, McConnell LM, Silverberg HL, Raffin TA| | PubMed
  162. Ethical decision-making in critical care in Hong Kong.
    Ip M, Gilligan T, Koenig B, Raffin TA| | PubMed
  163. Ethical Issues in Immigrant Health Care and Clinical Research.
    Patricia A. Marshall, Barbara A. Koenig, Paul Grifhorst, Mirjam van Ewijk| | UCSF Research Profile
  164. The difference that culture can make in end-of-life decisionmaking.
    Hern HE, Koenig BA, Moore LJ, Marshall PA| | PubMed
  165. Report of the Northern California Conference for Guidelines on Aid-in-Dying: definitions, differences, convergences, conclusions.
    Young EW, Marcus FS, Drought T, Mendiola M, Ciesielski-Carlucci C, Alpers A, Eaton M, Koenig BA, Loewy E, Raffin TA, Ross C| | PubMed
  166. Understanding the practice of ethics consultation: results of an ethnographic multi-site study.
    Kelly SE, Marshall PA, Sanders LM, Raffin TA, Koenig BA| | PubMed
  167. Reconfiguring nature and culture: intersections of medical anthropology and technoscience studies.
    Casper MJ, Koenig BA| | PubMed
  168. The power (and limits) of proximity.
    Koenig BA| | PubMed
  169. Advance directives. Changing our expectations.
    Drought TS, Koenig BA, Raffin TA| | PubMed
  170. Organ transplantation (re)examined?
    Koenig BA, Hogle LF| | PubMed
  171. Understanding cultural difference in caring for dying patients.
    Koenig BA, Gates-Williams J| | PubMed
  172. Cultural aspects of nondisclosure.
    Orona CJ, Koenig BA, Davis AJ| | PubMed
  173. When is a patient "dying"?
    Muller JH, Koenig BA| | PubMed
  174. Should anencephalic infants be used as organ donors?
    Koenig BA| | PubMed
  175. AIDS and ethics.
    Jonsen AR, Cooke M, Koenig BA| | PubMed
  176. Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology
    Ashok Kumbamu, Gail Geller, Aaron Leppin, Cara Fernandez, Jon Tilburt, and Barbara Koenig| UCSF Research Profile