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Barbara Koenig, PhD, RN

Barbara Koenig, PhD, RN

  • Professor, Institute for Health and Aging

Contact Information

3333 California Street
San Francisco, CA 94118
Phone: 415-476-3786
Fax: 415-476-3915
barbara.koenig@ucsf.edu
Twitter @BarbaraAKoenig1
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  Institution  
  Degree    
  Dept or School    
  End Date    
  • University of California, San Francisco & Berkeley
  • PhD
  • Graduate Division (Medical Anthropology)
  • 1988
  • University of Minnesota, Minneapolis
  • BA
  • Asian History (magna cum laude)
  • 1976
  • University of Minnesota, Minneapolis
  • BS
  • Nursing (with distinction)
  • 1974
  • Data provided by UCSF Profiles, powered by CTSI
    • Genomic sequencing to aid diagnosis in pediatric and prenatal practice: Examining clinical utility, ethical implications, payer coverage, and data integration in a diverse population.
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      Aug 2017
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      May 2022
      Principal Investigator
    • Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening
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      Jan 2017
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      Dec 2021
      Principal Investigator
    • Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
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      Sep 2013
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      Aug 2019
      Principal Investigator
    • Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment
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      Sep 2011
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      Jul 2017
      Principal Investigator
    • Center for Transdisciplinary ELSI Research in Translational Genomics
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      Jun 2013
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      May 2017
      Principal Investigator
    • Translating Addiction Genomics Research into Practice: Examining Ethics &Policy
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      Dec 2001
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      Jul 2012
      Principal Investigator
    • PROMOTING EFFECTIVE COMMUNICATION AND DECISION-MAKING FO
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      Sep 2000
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      Aug 2006
      Co-Investigator
    • Conference Proposal Neuroethics: Mapping the Field
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      May 2002
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      Apr 2003
      Principal Investigator
    • A CASE-BASED ETHICS CURRICULUM FOR THE BIOTECH INDUSTRY
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      Mar 2000
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      Feb 2002
      Principal Investigator
    • CULTURAL PLURALISM ÐICAL DECISION-MAKING IN NURSING
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      Feb 1992
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      Feb 1996
      Principal Investigator
    Data provided by UCSF Profiles, powered by CTSI
    • Study ID: NCT03525431
      Start Date: Aug 2017
      Estimated Completion Date: Nov 2021
      Condition(s): Brain Diseases, Birth Defect, Intellectual Disability, Multiple Congenital Anomaly, Metabolic Disease, Epilepsy, Neurodegenerative Disease, Cerebral Palsy, Developmental Delay, Developmental Defect
    MOST RECENT PUBLICATIONS FROM A TOTAL OF 162
    Data provided by UCSF Profiles, powered by CTSI
    1. James JE, Riddle L, Caruncho M, Koenig BA, Joseph G. A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial. J Genet Couns. 2022 Jul 25. View in PubMed
    2. Simon M. Outram, Sara L. Ackerman, Matthew Norstad, Barbara Koenig. The challenge of recruiting diverse populations into health research: an embedded social science perspective. New Genetics and Society. 2022 Jul 3; 41(3):216-226. View in PubMed
    3. Matthew Zook, Solon Barocas, Danah Boyd, Kate Crawford, Emily Keller, Seeta Peña Gangadharan, Alyssa Goodman, Rachelle Hollander, Barbara A. Koenig, Jacob Metcalf, Arvind Narayanan, Alondra Nelson, Frank Pasquale. Ten Simple Rules for Responsible Big Data Research. . 2022 May 21; 521-534. View in PubMed
    4. Wang T, Antonacci-Fulton L, Howe K, Lawson HA, Lucas JK, Phillippy AM, Popejoy AB, Asri M, Carson C, Chaisson MJP, Chang X, Cook-Deegan R, Felsenfeld AL, Fulton RS, Garrison EP, Garrison NA, Graves-Lindsay TA, Ji H, Kenny EE, Koenig BA, Li D, Marschall T, McMichael JF, Novak AM, Purushotham D, Schneider VA, Schultz BI, Smith MW, Sofia HJ, Weissman T, Flicek P, Li H, Miga KH, Paten B, Jarvis ED, Hall IM, Eichler EE, Haussler D, Human Pangenome Reference Consortium. The Human Pangenome Project: a global resource to map genomic diversity. Nature. 2022 04; 604(7906):437-446. View in PubMed
    5. Zuk P, Sanchez CE, Kostick-Quenet K, Muñoz KA, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Outram S, Koenig BA, McGuire AL, Lázaro-Muñoz G. Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation. AJOB Neurosci. 2022 Apr 18; 1-13. View in PubMed
    6. View All Publications

     

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