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Barbara Koenig, PhD, RN

Barbara Koenig, PhD, RN

  • Professor, Institute for Health and Aging

Contact Information

3333 California Street, #360T
San Francisco, CA 94118
Phone: 415-476-3786
Fax: 415-476-3915
[email protected]
Twitter @BarbaraAKoenig1
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Education

  Institution  
  Degree    
  Dept or School    
  End Date    
  • University of California, San Francisco & Berkeley
  • PhD
  • Graduate Division (Medical Anthropology)
  • 1988
  • University of Minnesota, Minneapolis
  • BS
  • Nursing (with distinction)
  • 1974
  • University of Minnesota, Minneapolis
  • BA
  • Asian History (magna cum laude)
  • 1976

    • Mentoring Overview

    Dr. Koenig is an anthropologist working in the inter-disciplinary field of bioethics. She founded and led Biomedical Ethics Research Programs at Stanford and Mayo Clinic and pioneered the use of empirical methods in the study of ethical questions in science, medicine, and health. Dr. Koenig has considerable experience mentoring clinicians and scientists across educational levels, from pre-docs through residents, fellows, and junior faculty. She leads a Bioethics grant for the WISDOM study with Drs. Esserman and van 't Veer. 

    Training opportunities with Dr. Koenig focus on ethical issues around translational genetic testing (e.g. whole genome/exome testing or polygenic risk scores), use of patient data, return of uncertain results, and work at the clinical/research boundary (including on WISDOM).

    Research & Funding

    Data provided by UCSF Profiles, powered by CTSI
    • Genomic sequencing to aid diagnosis in pediatric and prenatal practice: Examining clinical utility, ethical implications, payer coverage, and data integration in a diverse population.
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      Aug 2017
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      May 2022
      Principal Investigator
    • Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening
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      Jan 2017
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      Dec 2021
      Principal Investigator
    • Sequencing of Newborn Blood Spot DNA to Improve and Expand Newborn Screening
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      Sep 2013
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      Aug 2019
      Principal Investigator
    • Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment
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      Sep 2011
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      Jul 2017
      Principal Investigator
    • Center for Transdisciplinary ELSI Research in Translational Genomics
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      Jun 2013
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      May 2017
      Principal Investigator
    • Translating Addiction Genomics Research into Practice: Examining Ethics &Policy
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      Dec 2001
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      Jul 2012
      Principal Investigator
    • PROMOTING EFFECTIVE COMMUNICATION AND DECISION-MAKING FO
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      Sep 2000
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      Aug 2006
      Co-Investigator
    • Conference Proposal Neuroethics: Mapping the Field
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      May 2002
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      Apr 2003
      Principal Investigator
    • A CASE-BASED ETHICS CURRICULUM FOR THE BIOTECH INDUSTRY
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      Mar 2000
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      Feb 2002
      Principal Investigator
    • CULTURAL PLURALISM ÐICAL DECISION-MAKING IN NURSING
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      Feb 1992
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      Feb 1996
      Principal Investigator

    Clinical Trials

    Data provided by UCSF Profiles, powered by CTSI
    • Clinical Utility of Pediatric Whole Exome Sequencing
      Study ID: NCT03525431
      Start Date: Aug 2017
      Estimated Completion Date: Nov 2021
      Condition(s): Brain Diseases, Birth Defect, Intellectual Disability, Multiple Congenital Anomaly, Metabolic Disease, Epilepsy, Neurodegenerative Disease, Cerebral Palsy, Developmental Delay, Developmental Defect

    Publications

    MOST RECENT PUBLICATIONS FROM A TOTAL OF 173
    Data provided by UCSF Profiles, powered by CTSI
    1. Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 Oct 23; 8(1):34. View in PubMed
    2. Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P, Lázaro-Muñoz G. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial. Brain Stimul. 2023 Jul-Aug; 16(4):990-998. View in PubMed
    3. Riddle L, Joseph G, Caruncho M, Koenig BA, James JE. The role of polygenic risk scores in breast cancer risk perception and decision-making. J Community Genet. 2023 Oct; 14(5):489-501. View in PubMed
    4. Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E, Shieh J, Strober J, Tam A, Tenney J, Weiss W, Whittle A, Chin G, Faubel A, Prasad H, Mavura Y, Van Ziffle J, Devine WP, Hodoglugil U, Martin PM, Sparks TN, Koenig B, Ackerman S, Risch N, Kwok PY, Norton ME. Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population. NPJ Genom Med. 2023 May 26; 8(1):10. View in PubMed
    5. Mavura Y, Sahin-Hodoglugil N, Hodoglugil U, Kvale M, Martin PM, Van Ziffle J, Devine WP, Ackerman SL, Koenig BA, Kwok PY, Norton ME, Slavotinek A, Risch N. Diagnostic Yield of Exome Sequencing in a Diverse Pediatric and Prenatal Population is not Associated with Genetic Ancestry. medRxiv. 2023 May 24. View in PubMed
    6. View All Publications

     

     
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